Settling dust and growing apart

Your baby is born, you get the diagnosis, you have the surgery or surgeries, then you have the aftermath of life with chronic illness. The initial outpouring support is overwhelming. You’re not even sure how to thank people correctly for the gestures that are done. You are so grateful and so overwhelmed by everything happening […]

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Oct 28 – 9 weeks old

Is it bad that I literally just had to count the Sundays since Len’s arrival? 9 weeks. NINE WEEKS. How is that even possible? It seems so much shorter and so much longer all at the same time. I think that statement will make the most sense to anyone who’s had a sick child and […]

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September 2nd, 2018

It’s been one week since Lennyn was born. We’ve officially been in the hospital for 8 days. As i sit here waiting to be discharged for a second time, there is a lot of reflecting to do. Lennyn has made an complete 360. On Tuesday we were preparing for a transfer and possible transplant. Then […]

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August 28th, 2018 – Update

Today has been challenging. Today has been a reminder of how fragile life is, especially life of an early term baby. Lennyn has been diagnosed with Pulmonary Hypertension. In pulmonary hypertension, the blood vessels of the lungs have an increased amount of muscle in the walls. This causes a higher resistance in the lungs. The […]

Read More August 28th, 2018 – Update

August 28th, 2018

Lennyn Update: We are still trying to get her stabilized and on to a c-pap in lieu of intubation. They have ordered some tests to see if she’s coming down with an infection because she shouldn’t still need the amount of O2 she is on. Because she isn’t responding well to the distraction of visitors, […]

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