Lennyn was officially diagnosed with Autism today. ASD associated with a known medical condition, to be precise. It’s been a long road (and a long wait for a good developmental ped) but we’re finally opening some doors and cutting some red tape to therapies she desperately needs. Hopefully this is the final diagnosis for the […]Read More New diagnosis
I haven’t posted a neuro update in a while because I don’t want to jinx the streak we’ve been on. In the epilepsy world, when it’s going good, you don’t talk about it. The Bug went for a follow up EEG today, to get a new baseline a few months into new meds. I figured […]Read More Neurology update
Walk for Epilepsy 2022 was a success! Had a blast and even won tickets to the zoo! #LennynStrongRead More Walk for Epilepsy 2022
Lennyn went on her first ride today 🥺😍 #LennynStrongRead More First Ride!
Lennyn’s original wish was to meet Caitie and Tobee from Caitie’s Classroom but because of Covid and her health we had to come up with a more realistic wish. Caitie and Tobee still wanted to make sure Lennyn knew how loved she was! How special! 😭 Thank you so much friends ♥️ #LennynStrongRead More Caitie’s Classroom
Absolutely blown away with the generosity of Make-A-Wish. Lennyn wanted to go camping, and now she’ll be camping in style, wherever, whenever. 😭♥️ #LennynStrongRead More Make-a-wish
This girl has a super special day ahead of her! #LennynStrongRead More ✨
Lennyn update: Good news: her eeg has improved since she was hospitalized. Leaving the LGS diagnosis in her chart so she is approved for certain meds, but she doesn’t have a concrete diagnosis YET. Bad news: her eeg still looks messy and she could further progress to a concrete diagnosis. Good news: there’s a lot […]Read More EEG Results
Big EEG day for Lennyn. Prayers in overdrive that she doesn’t have LGS and her amplified seizures were a horrible side effect of a medication she is now off of! #LennynStrong! 💪🏻💪🏻💪🏻♥️Read More Big Day!